Bibliografia sul rapporto
tra bambini piccoli con sindrome di Down e i loro fratelli

In ordine cronologico, aggiornata al Novembre 2003, a cura del gruppo sorelle e fratelli, www.siblings.it.
Sono allegati alcuni abstract in inglese tradotti dai siblings in italiano, i links alle fonti, e alcuni articoli full text.

Questo lavoro è stato inviato come contributo alla preparazione delle
"Linee Guida Multidisciplinari per l'Assistenza Integrata
alle Persone con Sindrome Down e alle Loro Famiglie" (LGSD)
in collaborazione con L'Istituto Superiore di Sanità

Grossman FD.
Brothers and sisters of retarded children: an exploratory study.
Syracuse University Press, 1972

Gath A.
Down's Syndrome and the family. The early years.
Academic Press, London, 1978

Gunn P, Berry P.
The temperament of Down's syndrome toddlers and their siblings.
J Child Psychol Psychiatry. 1985 Nov;26(6):973-9.
scarica l'Abstract (inglese, con traduzione italiana)

Gath A, Gumley D.
Retarded children and their siblings.
J Child Psychol Psychiatry. 1987 Sep;28(5):715-30.
Drummond Clinic, West Suffolk Hospital, Bury St. Edmunds, Suffolk, U.K.
scarica l'Abstract (inglese, con traduzione italiana)

Gath A.
Down syndrome children and their families.
Am J Med Genet Suppl. 1990;7:314-6.

Zambon Hobart A.
La famiglia e il bambino con sindrome di Down.
In Ferri-Spagnolo: La sindrome di Down. Il Pensiero Scientifico Ed, Roma, 1990

Zambon Hobart A.
Ancora a proposito dei fratelli.
In Sindrome Down Notizie, Associazione Bambini Down, n. 3, p. 15-17, Set-Dic 1992

Van Riper M, Ryff C, Pridham K.
Parental and family well-being in families of children with Down syndrome: a comparative study.
Res Nurs Health. 1992 Jun;15(3):227-35.

Bryne EA, Cunningham CC, Sloper P.
Families and their children with Down syndrome: One feature in common.
London, Routledge.1988
Le famiglie dei bambini Down.
Trento, Erickson. 1992

Cuskelly M, Dadds M.
Behavioural problems in children with Down's syndrome and their siblings.
J Child Psychol Psychiatry. 1992 May;33(4):749-61.
University of Queensland, Fred & Eleanor Schonell Education Research Center, Brisbane, QLD, Australia.
scarica l'Abstract (inglese, con traduzione italiana)

Cuskelly M, Gunn P.
Maternal reports of behavior of siblings of children with Down syndrome.
Am J Ment Retard. 1993 Mar;97(5):521-9.
University of Queensland, Fred & Eleanor Schonell Education Research Center, Brisbane, QLD, Australia.
scarica l'Abstract (inglese, con traduzione italiana)

Powell TH, Ahrenholds Gallagher P.
Brothers and sisters. A special part of exceptional families.
Paul H. Brookes Publishing & Co., Baltimore. 1993

Zambon Hobart A.
La persona con Sindrome Down. Un'introduzione per la sua famiglia.
Il Pensiero Scientifico Editore, Roma, 1996

Cuskelly M, Chant D, Hayes A.
Behaviour problems in the siblings of children with Down syndrome: Associations with family responsibilities and parental stress.
International Journal of Disability, Development & Education. 1998 Sep;45(3):295-311.

Wolf L, Fisman S, Ellison D, Freeman T.
Effect of sibling perception of differential parental treatment in sibling dyads with one disabled child.
J Am Acad Child Adolesc Psychiatry. 1998 Dec;37(12):1317-25.
Division of Child and Adolescent Psychiatry, Children's Hospital of Western Ontario, London, Canada.
scarica l'Abstract (inglese, con traduzione italiana)

Stores R, Stores G, Fellows B, Buckley S.
Daytime behaviour problems and maternal stress in children with Down's syndrome, their siblings, and non-intellectually disabled and other intellectually disabled peers.
J Intellect Disabil Res. 1998 Jun;42 ( Pt 3):228-37.
Department of Psychology, University of Portsmouth, England.
scarica l'Abstract (inglese, con traduzione italiana)

Van Riper M. Living
Living with Down Syndrome: The Family Experience.
Reprinted from Down Syndrome Quarterly, Volume 4, Number 1, March, 1999
Department of Community, Parent-Child, and Psychiatric Nursing The Ohio State University
scarica l'Articolo (inglese)

Fermariello C, Gwis A.
Essere sorella o fratello di persona con SD
Sindrome Down Notizie, n.2-2002, n. 2, pp. 53-54.
scarica l'Articolo (italiano e traduzione inglese)

Cuskelly M, Gunn P.
Sibling relationships of children with Down syndrome: perspectives of mothers, fathers, and siblings.
Am J Ment Retard. 2003 Jul;108(4):234-44.
Fred and Eleanor Schonell Special Education Research Centre, University of Queensland, Queensland, Australia. m.cuskelly@mailbox.uq.edu.au
scarica l'Articolo (inglese)

Rossotti S.
Io e mia sorella.Intervista a Federico Girelli
Settimanale "Grazia", n. 42, pp. 103-106, Ott 2003

Bellan F, Manzato I.
Fratello Sole Sorella Down.
Piove di Sacco, Nov 2003 (ivmanza@tin.it).

 

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